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My son Lennon was born 12 weeks premature. He was extremely medically complex and had profound and multiple learning disabilities. Lennon required nursing care around the clock to stay alive which myself and Ian provided at home with the help of amazing medical teams both locally and at Great Ormond Street. Lennon was under Palliative Care for 8 years and we were supported by our local Children’s Hospice, Keech Hospice.